Amyotrophic Lateral Sclerosis Insights

Statin Use Does Not Affect ALS Survival

April 09, 2025

Latest Research

Recent research has highlighted the genetic aspects of amyotrophic lateral sclerosis (ALS), focusing on the GGGGCC repeat expansion in the C9orf72 gene. This genetic mutation is a significant cause of ALS and is being studied to understand its impact on the nervous system.

Studying these mutations in model organisms aims to uncover the underlying mechanisms of ALS and develop more effective treatments. This research contributes to ongoing efforts to understand and combat ALS, a condition with complex causes (Wei et al., 2025).

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

A Study to Evaluate the Safety and Pharmacokinetics of Single and Multiple Doses of Prosetin in Healthy Volunteers and Participants With ALS

A Study Evaluating the Safety and Tolerability of QRL-201 in ALS

Spinal Cord Associative Plasticity for ALS

View the full list of clinical trials →

Community News

Les Turner ALS FoundationApr 01, 2025

The Hope Through Caring Gala isn’t just a night—it’s a movement. And you can be part of it from anywhere.

Our online auction is now open! Bid on unforgettable getaways, rare experiences, and more. Every dollar helps people and families living with ALS.

👉 Start bidding today: https://buff.ly/UN996d3

ALSAssociationApr 02, 2025

ALS Matters is an inspiring ALS Association podcast hosted by Cory Mosley. In this episode, ALS Matters host Cory Mosley and his cousins open up about living with a genetic form of ALS—the emotional weight, the family impact, and the guilt of having a mutation that now has a treatment.

They break the silence previous generations carried, sharing their lived-experience and the hope that Qalsody brings. This is more than a conversation—it’s a powerful shift in how we talk about ALS, because ALS matters.

ALS Hope FoundationApr 01, 2025

Get Ready for the Gala: Essential Details Inside!

Prepare for an unforgettable evening! Our 'Know Before You Go' guide has all the key information to ensure you make the most of the gala. From event timings to dress code, we've got you covered! See you this Saturday!

Check it out: https://bit.ly/3E5GBLd