Amyotrophic Lateral Sclerosis Insights

This week's must-know community updates, latest research & events

March 13, 2025

New This Week

Exciting news! There is now a new section featuring clinical trials that are actively recruiting patients. This highly requested addition gives you direct access to cutting-edge research opportunities that could shape the future of treatment.

Stay informed about potentially life-changing studies and let us know what you think by replying to this email!

Latest Research

In a systematic review and meta-analysis, Masood et al. (2025) evaluated the safety and effectiveness of the drug Arimoclomol in treating patients with Amyotrophic Lateral Sclerosis (ALS). The study compiled results from various clinical trials to determine if Arimoclomol could be considered a reliable treatment option for ALS patients. The analysis included data from multiple studies, ensuring a broad overview of Arimoclomol's impact. The findings indicated that Arimoclomol was generally safe for patients, with few adverse effects reported. However, in terms of efficacy, the results were mixed. Some measures of motor function showed slight improvements, while others did not demonstrate significant changes. The study underscores the need for further research to conclusively determine the drug's effectiveness in ALS treatment.

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

Research on Wireless Brain Implant System for General Control of External Devices

Precise Robotically IMplanted Brain-Computer InterfacE

PREVENT ALL ALS Study

View the full list of clinical trials →

Community News

ALSAssociationMar 11, 2025

ALS is a disease that robs people of the ability to walk, talk, eat and breathe. Established in 1985, the ALS Association is the only national nonprofit organization fighting ALS on every front. 💗

ALS Hope FoundationMar 12, 2025

We were delighted to kickoff our ALS Men's Group where pALS, including men who are caregivers and widowers that can come together in a safe but open environment to connect with one another. John Furey (researcher at the MDA ALS Center of Hope) and Jamey Piggott (Executive Director of the ALS Hope Foundation) will be hosting and meeting every other Thursday afternoon at 1:30 (March 13 and March 27) at the ALS Hope Foundation office in Ft Washington, Pa. If interested please DM us or send email to [email protected] We would love to have you join us. Plus snacks !!

ALS NetworkMar 09, 2025

Use code 447 this tax season and help those who are battling neurodegenerative diseases like ALS. Contribute to the California ALS Research Network Voluntary Tax Contribution Fund.

At least $250,000 must be raised annually for the program to remain on the CA income tax return form. Make an impact on ALS research today by contributing $1 or more. There is no maximum contribution amount!

To learn more visit: https://ow.ly/P50K50UY10X.