Amyotrophic Lateral Sclerosis Insights

HealthSpotlight is now AllMyHealth

February 27, 2025

Exciting News!

HealthSpotlight is now AllMyHealth

Wondering why we have a brand new look? We have exciting news - HealthSpotlight has merged with and rebranded as AllMyHealth.

Our shared commitment to supporting rare disease communities with trusted resources and advocacy remains as strong as ever - now under a unified name that reflects our patient-first values.

We collaborate with patient support groups to create advocacy materials and amplify community news and events.

Want to work with us? Find out more here

Exclusive Report

New Report Release: A Guide to Nutrition for Patients with Amyotrophic Lateral Sclerosis

We’re excited to share our latest in-depth report. This guide provides practical insights on how nutrition plays a vital role in amyotrophic lateral sclerosis.

Key highlights: understanding amyotrophic lateral sclerosis and its impact on nutrition, general dietary guidelines for people with amyotrophic lateral sclerosis, specific nutritional needs for amyotrophic lateral sclerosis patients, practical advice and meal planning tips (including sample meal plans and recipes).

Available in both text and audio formats - dive in today and share with your community!

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/reports

Latest Research

In a study by Lajoie et al. (2025), researchers analyzed brain scans from 178 patients with amyotrophic lateral sclerosis (ALS) and 166 healthy individuals to determine if brain changes could predict patient survival. They used deformation-based morphometry, a technique that identifies changes in brain structure, to find patterns of brain atrophy associated with ALS progression and survival. The study found that certain brain regions, like the corpus callosum and thalamus, showed atrophy that correlated with a higher risk of mortality.

When the team combined these brain imaging features with clinical data, the accuracy of survival predictions improved significantly. This suggests that brain scans can provide additional, valuable information for forecasting the course of ALS beyond what clinical assessments can offer. The findings highlight the potential of using detailed brain imaging to understand ALS better and to aid in patient care planning.

Community News

ALSAssociationFeb 26, 2025

What is ALS?

ALS is a progressive disease in which a person’s brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. There is no cure for ALS, but there is hope. Share this graphic to spread awareness of ALS.

ProjectALSFeb 24, 2025

Tomorrow a member of the Project ALS Family, Mike Wetherhold, will be setting off on an adventure of a lifetime—hiking the entire Appalachian Trail. This feat will combine his passion for backpacking with his commitment to finding a cure for ALS.

"I am dedicating this hike to my Uncle Jay, who was diagnosed with ALS at a similar age to mine, and two friends I lost to this devastating disease. I hope you'll follow along and support Project ALS in any way you can."

Let’s cheer Mike on and show that every step he takes brings us closer to a cure.

Support Mike’s hike today: https://bit.ly/41gIGeZ

Les Turner ALS FoundationFeb 21, 2025

We are also highlighting Kristin Kolich for National Caregivers Day. When she found out her dear friend Jennifer was diagnosed with ALS, she stepped up to be her caregiver. It is a unique experience in that she gets to support her friend and is closely connected with the family.