Weekly Spotlight - 07.11.24

A touching personal message, new caregiver support initiatives, and the path to future ALS therapies.

Community

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The ALS Association share a touching message

A note from Lacey’s daughter, whose father sadly passed away from ALS.

In the News

I AM ALS Launches National Peer Support Program for Caregivers and Families

I AM ALS has launched a national Peer Support Specialist Program to aid ALS caregivers and patients. This initiative, part of a broader campaign, aims to provide training, resources, and emotional support. The programme highlights the power of community in addressing the growing needs of those affected by ALS.

Les Turner Symposium: Advancing ALS Research and Care in Chicago

The 14th Les Turner Symposium on ALS will be held in Chicago this autumn, offering both virtual and in-person attendance. It gathers ALS experts, advocates, and patients to discuss advancements in ALS research and care. This event provides a hopeful glimpse into future treatments and support for those affected.

Understanding ALS: Genetic Insights and Future Treatment Possibilities

The article explores Amyotrophic Lateral Sclerosis (ALS), a neurodegenerative disease affecting motor neurons. It highlights genetic and environmental factors contributing to ALS, emphasising the need for advanced research. Current treatments are limited, but gene and stem cell therapies offer hope for future breakthroughs in personalised medicine.

Nanoparticles Enhance ALS Treatment by Activating Lysosomal Channels

Nanoparticles encapsulating phosphatidylinositol derivatives show promise in treating ALS by activating the TRPML1 lysosomal channel. This activation enhances autophagy, potentially prolonging survival and improving motor function in preclinical models. The study highlights a hopeful step towards effective ALS therapies, offering reassurance to patients and families.

Health Spotlight’s Amyotrophic Lateral Sclerosis is a Contentive publication in the Healthcare division