Weekly Spotlight - 14.11.24

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In the News

Trace Neuroscience Secures $101M to Advance ALS Genomic Medicine

Trace Neuroscience has launched with $101 million funding to develop genomic therapies for neurodegenerative diseases, focusing on ALS. Their lead programme aims to restore UNC13A protein, improving nerve-muscle communication. This innovative approach offers hope for ALS patients, potentially enhancing muscle function and quality of life.

Les Turner Symposium on ALS Unites Community Around Research and Patient Care

The Les Turner Symposium on ALS united researchers, clinicians, and the ALS community to share advancements in understanding and treating ALS. Key discussions included genetic research, immune system differences, and clinical trial improvements. The event emphasised collaboration and patient involvement to accelerate finding effective treatments for ALS.

Local Foundation Supports Families Living With ALS

The Tyler Street Foundation awarded £50,000 to the ALS Association, launching the Stacy Crowder Quality of Life Program in Dallas. This funding aids ALS families with medical expenses, equipment, and support services. The programme honours Stacy Crowder, aiming to alleviate financial burdens for those affected by ALS.

von Trapp Brewing Supports ALS with Special Pilsner Release

von Trapp Brewing, inspired by Austrian lagers, supports Ales for ALS with a West Coast Pilsner. Marketing Director Emily Provost, personally affected by ALS, drives this initiative. The brewery's involvement raises awareness and funds for ALS research, showcasing community support and the impact of creative business engagement in meaningful causes.

Faces of ALS: A Veteran Nurse's Journey of Service and Strength

Connie Daniels, a retired Army nurse, faces ALS with resilience. Despite challenges accessing veteran care, she remains determined. Her story highlights the importance of persistence and support for veterans with ALS. Donations to the Les Turner ALS Foundation aid research and care, offering hope to affected families.