Weekly Spotlight - 31.10.24

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In the News

Packard Centre Empowers ALS Patients Through Clinical Research Education

The Packard Center's inaugural ALS Clinical Research Learning Institute at Johns Hopkins welcomed 22 participants who engaged in learning about ALS research. These individuals emerged as Research Ambassadors, prepared to contribute to future studies. The event successfully combined education with camaraderie, demonstrating that learning about clinical trials can be both informative and enjoyable.

Dr. Suleyman Can Akerman: Advancing ALS Research Through Protein Aggregation Study

Dr. Suleyman Can Akerman, a postdoctoral researcher at Johns Hopkins, is investigating protein aggregation and extracellular vesicles in ALS. His research, supported by the Safenowitz Fellowship, aims to develop novel therapies and biomarkers. Dr. Akerman draws inspiration from the commitment of the collaborative ALS research community to combat this challenging disease.

Neurosense and FDA Discuss Phase 3 Trial for ALS Therapy

Neurosense is preparing for discussions with the FDA regarding their Phase 3 trial for PrimeC, a potential treatment for ALS. This therapy, which combines ciprofloxacin and celecoxib, has shown promise in slowing disease progression. The company is also seeking early approval in Canada, offering hope for a significant advancement in ALS treatment.

MDA 2025 Conference to Focus on Neuromuscular Disorder Innovations

The 2025 MDA Conference in Dallas will bring together experts, patients, and advocates to explore recent advancements in neuromuscular disorders. Attendees can anticipate engaging discussions on muscle regeneration, ALS research, and diversity within the neuromuscular field. With both virtual and in-person attendance options available, this conference promises to be an important event for the scientific community. Register now to secure your participation.